Data collection and minimum data set

This task force is dedicated to developing a Precision Health Common Data Model (PH-CDM) and a centralized repository to harmonize symptom data collection across studies and clinical settings. Building on previous initiatives to define and implement Common Data Elements (CDEs), the group emphasizes standardized, interoperable, and patient-centered data.

The ultimate goal is to enable robust cross-study comparisons, enhance data integration, and support large-scale analyses of symptom experience and burden.